22/02/2026
"Over the next 5 months every specialist under the sun worked with her. They gave her plasmaferesis which basically cleaned her blood. She had two lines directly into her heart. Things started to improve and over time she learnt to read and write again,walk,talk and spent years with therapists of all types. I can't remember all the different medications she was on. She had intravenous lines in her hand arms and feet at one point. As time progressed various problems came to light. Her bladder would never recover fully neither would her walking. She was left with ME(chronic fatigue) vasovagal, a fainting condition,memory loss, anxiety problems, complex PTSD and recently diagnosed BPD" (that's a story for another day!)
"I never thought I would see Celda leave home. I had advice from her consultant that this would never go away and over the years she would present all sorts of conditions both physically and mentally. She worked so hard at school,despite bullying,and very little support from teachers. She even chose to repeat a year in high school even though she had no friends in that year. For almost the whole time she worked in a room by herself because the bullying was so bad. All she wanted was to go to university."
Whilst learning how to talk again, I also had to learn how to walk but due to the muscle and nerve damage, I could only walk a tiny bit. And this took MONTHS to be able to even stand as I was paralysed for a long time. Due to the brain damage, my left side is weaker, which means I walk with a limp. After months of physio and every test under the sun, I was able to walk small distances, but I’ve been left with Crouch Gait (very common in cerebral palsy). Long story short, I was in hospital for 5-6 months and was able to have home visits which eventually lead to me being discharged.
Mum's take on the weight of the world for their children and mine did and some. Without her, I really don't know if I'd still be here today. She carries just as much of the trauma as I do and I hope that she knows how strong she really is 💖
Continued in the next post 👉🏻
