10/11/2026
This body changing stuff is NOT for the birds! It’s been a while I’m sorry!! Thank you for the msgs, checking on me. I’ve been adapting to this new “whatever this is”… yes I still have the episodes, No, the tremors in my hands haven’t eased up. I’ve seen some specialists, and FINALLY had an appt with neuro. He dx me with an unknown epilepsy, I’m doing a 72 hour EEG (with video/audio recording) in my home, coming up on Sunday.
My body is pretty healthy.. BP is controlled with meds, glucose is under control (with meds Again 🙏❤️) my energy is returning back to what it used to be … purged 25 years of crap from my main living floor, gutted a bedroom and turned it into an amazing craft room, I have a decent schedule now. Sleep … is what it is. Maybe the EEG will give some insight to what’s going on there? 🤷🏻♀️
I think the biggest issue I have, is people. So quick to judge… telling me I’m fine. Questioning how one day, I’m having these seizure episodes, then the next day- I’m fine, at a church gathering, etc etc….
That really sucks. That hurts. If I knew how to control whatever’s going on, then- I’d be able to stop it.. I can not. So, I chose the Healthier decision to learn how to adapt, pace myself, listen to my body, and go about my life the best I can. Was it a bit much in the beginning back in May/June? Sure maybe.. ICU admittance for unresponsive glucose treatment, random seizure activity… My body has been detoxing from the (ironically) anti seizure meds I was on for roughly 15 years, as part of a medical treatment for something, that- 🤯 come to find out I NEVER HAD! (ALWAYS!!!! Advocate for yourself!). Thank God for the lab tests they have now…. That said, it’s *possible* that since my last med in November, my body’s been through so many changes… that the side effects of the anti seizure meds completely left as of May/june = all the crap I’ve been dealing with
I’m grateful for the tests, the appointments, and my medical team.
Don’t ever give up on yourself!
Don’t let judgment/words of others get in the way of your progress or goals!
Always advocate for yourself!
…. Shed the negative people and their words faster than you shed the lbs! It’s Hard. I know. It took me 45 years and I’ve only wet my toes..
On the other hand, living in my old body, masked, muted, medicated, was hard.
✨ CHOOSE YOUR HARD ✨
I prefer who I continue to become. Healthier, happier, growing in faith, and discovering so many New joys❤️
Love yourself. You deserve it!
I’ll post an update after the EEG results are in